Pick your way to make noise.
Awareness is built one voice, one event, one shared post at a time. There's a job here with your name on it — pick the one that fits your week.
How you can help.
Volunteer
Help at events, in the office, or behind the scenes. Two hours a month or two days a week — every gift of time matters.
Learn moreFundraise your way
Run. Climb. Bake. Lift. We hand you the toolkit and cheer the loudest.
Learn moreCorporate partner
Match-funding, charity of the year, employee challenges — we'll build a programme around your team.
Learn moreAmbassador
Be a public voice for Titinopathy awareness in your community, school or workplace.
Learn moreShare Noah's story
Post, repost, retell. One share can reach a family who's never heard the word Titinopathy.
Learn moreHost an event
Quiz nights, gym days, gala dinners — we help you plan it end to end.
Learn moreSteal everything we have.
Ready-made posters, donation pages, social tiles, and a step-by-step guide. Everything you need to run something brilliant — already designed, free to download, yours to remix.
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Trusted by partners across the UK
"I came to give a Saturday. I left with a community I never knew I needed. Noah's name is on everything we do — and somehow that's everything."
— Hannah, volunteer since 2025
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